A five-year-old boy is battling an agonising and potentially lethal condition that causes his skin to grow at ten times the normal rate.
Evan Fasciano, from Goshen, Connecticut, was born with Harlequin Ichthyosis, a genetic disorder that leaves him with scales across his entire body.
Suffering from the severest form of the disease, Evan is at constant risk of infection - requiring him to have two baths a day so his 33-year-old mother De De can scrub off the scales.
She said: 'We're very strict with Evan's skin management, so we try to keep him scale-free, and because of that his scales tend to be very thin, so they're easier to get off.
'If we didn't bathe him twice a day then the scales would get much thicker, much faster and it would be harder to get off.
Evan Fasciano, now five, was born with Harlequin Ichthyosis, a genetic disorder that leaves him with scales across his entire body. His parents try and keep him scale free to minimise his discomfort