Why
don’t we speak enough about Sickle Cell? Research shows that Nigeria has the
largest cases of Sickle Cell in the world making up to 8% of infant mortality
rates in the country. To put it plainly many children to do not live to see
their 10th birthday, the genetic disorder occurs when persons containing sickle
cell trait pass on their genes to their children leaving them susceptible
to Anemia, delayed growth, frequent infections and strokes. Asides that
there is a huge stigma attached to the disorder and we want to push back
against that with the help of NGO Nirvana Initiative who specialise in
educating people about Sickle Cell Disease (SCD) at our event- ‘End Sickle Cell
in our Generation’.
Nirvana
Initiative provides a safe haven for sickle cell individuals so they do not
have to feel alone knowing they have a community there to pray with them, laugh
and support them in all their endeavors. Nirvana Initiative will be providing
free genotype testing for 200 people on the day 50 of which will be free. They
will also provide free drugs for warriors (a term used to describe those living
with sickle cell) finally there would be free counselling for those who feel it
may be required.